Every year, families, self-advocates, caregivers, siblings, doctors, and researchers come together to advocate for the entire Fragile X community and work toward our collective goals. This event is focused on shared priorities and policy initiatives. As a non-partisan organization, we aim to promote a unified message that supports the needs of the entire Fragile X […]
Family Conversations is a virtual webinar series created to bring together parents, caregivers, and loved ones of individuals with Fragile X syndrome. Designed as an open, welcoming space, the series invites families to connect, share their experiences, ask questions, and support one another through every stage of the Fragile X journey. Each session focuses on […]
Over the past 18 years, we have raised over $465,000 for FRAXA Research Foundation. This year, we’re aiming to shatter the half-million-dollar mark! This year’s event will be held on Friday, May 22, 2026, at the Bradford Country Club in Haverhill, MA. Kristen and Kevin Murphy has helped us put together another great tournament, including […]
Since 1997, when Patrick Vershbow was four years old and only three years into the challenges of living with Fragile X syndrome, Patrick's PALS 3-on-3 Basketball Tournament has been around in support of the amazing efforts of FRAXA! Somehow, 29 tournaments later, here we stand ready to mark our 30th anniversary in 2026. The PALS […]
This biennial conference presents a unique opportunity for nearly 1,000 parents and professionals from around the world to gather and learn the latest about Fragile X. The conference is geared toward all members of the Fragile X community: family members, caretakers, professionals, and researchers. There are even special sessions for individuals living with Fragile X […]
Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July, Fragile X Awareness Month, but feel free to start early or hold your walk or day at the park anytime! You can register as an individual, start a team, or […]
The NFXF International Fragile X Conference is the premier educational event for the Fragile X community. This biennial event brings individuals with Fragile X and their families, caregivers, friends, and professionals together to learn from one another and celebrate Fragile X. This unique experience is not only educational but also empowering.
World Fragile X Day is a global initiative of FRAXA Research Foundation. This global awareness event held each year on July 22 to honor individuals and families affected by Fragile X syndrome, the most common inherited cause of intellectual disability and a leading known genetic cause of autism. Established collaboratively by organizations and advocates around […]
So what is Fragile X awareness? During National Fragile X Awareness Month it’s especially evident. You and our combined voices amplify the message far and wide. For the past few years during Awareness Month, our and your Facebook posts alone are seen one million times. One million times! And that doesn’t include all of the […]
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