FRAXA Research Foundation is a nonprofit organization dedicated to finding effective treatments and ultimately a cure for Fragile X syndrome.
Advocacy partners
We are honored to partner with nonprofit advocacy organizations to amplify their missions, share helpful resources, and ensure patients and families have access to information that supports everyday decision-making. The information featured below was provided by our advocacy partners as part of this collaboration.
Since 1984, the National Fragile X Foundation has supported and empowered families impacted by Fragile X, by providing the knowledge, resources, and tools they need to navigate daily challenges and support individuals in reaching their full potential. Our work focuses on four strategic areas: promoting advocacy, providing education, advancing research, and improving treatments.