Fragile X Awareness Day/Month

So what is Fragile X awareness? During National Fragile X Awareness Month it’s especially evident. You and our combined voices amplify the message far and wide. For the past few years during Awareness Month, our and your Facebook posts alone are seen one million times. One million times!

And that doesn’t include all of the posters, t-shirts, media stories, your social media, blog posts, visitors to our website, talking to neighbors, teachers, doctors … the list — and the impact — go on and on. You should be proud of what you do!

And yet, people still ask, “Fragile what?”

Sadly, that isn’t limited to your average person on the street. You still hear it from doctors, therapists, special educators, teachers, family members, researchers, and more. Raising awareness means continuing to:

Educate doctors — About Fragile X syndrome, FXPOI, FXTAS, and other premutation carrier issues.
Help newly diagnosed families — With information about Fragile X and what the future holds.
Bring Fragile X families into the community network — For support and education at the NFXF.
Encourage researchers — To research Fragile X.
Motivate families — To participate in Fragile X studies and trials.
Advocate to Congress — For research funding and policies that create better tomorrows.
Educate therapists and educators — About the treatments and interventions available now.
Tell extended family members — What a diagnosis means.
And, of course, tell friends, neighbors, friends-of-friends, random people on the street, and, well, everyone, about Fragile X and how they, individually, can best support individuals living with it.

We all do this every day, but July is a special month to have a concerted effort!

Working alone, we couldn’t do all that we do for awareness, but by working together, we amplify our impact.