Every year, families, self-advocates, caregivers, siblings, doctors, and researchers come together to advocate for the entire Fragile X community and work toward our collective goals. This event is focused on shared priorities and policy initiatives. As a non-partisan organization, we aim to promote a unified message that supports the needs of the entire Fragile X […]

The NFXF International Fragile X Conference is the premier educational event for the Fragile X community. This biennial event brings individuals with Fragile X and their families, caregivers, friends, and professionals together to learn from one another and celebrate Fragile X. This unique experience is not only educational but also empowering.