Newsletter
  • Family Conversations

    Virtual Event

    Family Conversations is a virtual webinar series created to bring together parents, caregivers, and loved ones of individuals with Fragile X syndrome. Designed as an open, welcoming space, the series invites families to connect, share their experiences, ask questions, and support one another through every stage of the Fragile X journey. Each session focuses on […]

  • 2026 FRAXA Charity Golf Tournament

    The Bradford Country Club 201 Chadwick Rd., Haverville, MA, United States

    Over the past 18 years, we have raised over $465,000 for FRAXA Research Foundation. This year, we’re aiming to shatter the half-million-dollar mark! This year’s event will be held on Friday, May 22, 2026, at the Bradford Country Club in Haverhill, MA. Kristen and Kevin Murphy has helped us put together another great tournament, including […]

  • Patrick’s Pals 3 on 3 Basketball Tournament

    The Track at New Balance 91 Guest Street, Boston, MA, United States

    Since 1997, when Patrick Vershbow was four years old and only three years into the challenges of living with Fragile X syndrome, Patrick's PALS 3-on-3 Basketball Tournament has been around in support of the amazing efforts of FRAXA! Somehow, 29 tournaments later, here we stand ready to mark our 30th anniversary in 2026. The PALS […]

  • World Fragile X Day

    Virtual Event

    World Fragile X Day is a global initiative of FRAXA Research Foundation. This global awareness event held each year on July 22 to honor individuals and families affected by Fragile X syndrome, the most common inherited cause of intellectual disability and a leading known genetic cause of autism. Established collaboratively by organizations and advocates around […]

  Subscribe to our newsletter

Get regular updates to your inbox.

This field is for validation purposes and should be left unchanged.