Family Conversations

Family Conversations is a virtual webinar series created to bring together parents, caregivers, and loved ones of individuals with Fragile X syndrome. Designed as an open, welcoming space, the series invites families to connect, share their experiences, ask questions, and support one another through every stage of the Fragile X journey. Each session focuses on topics that matter most to families—daily challenges, practical strategies, emotional wellbeing, and the latest updates in Fragile X research and care.

What makes this series unique is that it is led entirely by FRAXA’s staff and board, all of whom are parents of children or adults with Fragile X. Their lived experience shapes every conversation. They understand the joy, uncertainty, exhaustion, and hope that families carry, creating an environment that feels authentic, compassionate, and deeply relatable. This peer-to-peer foundation fosters meaningful discussions and a strong sense of community.

Family Conversations also serves as a bridge between families and the research that drives progress. Participants gain insight into current studies, emerging therapies, and FRAXA’s mission to accelerate treatments—always presented in clear, accessible language. Whether someone is newly navigating a diagnosis or has been connected to the Fragile X community for years, the series offers practical guidance and heartfelt connection.

By bringing families together from across the country and around the world, Family Conversations reaffirms that no one walks this journey alone. These gatherings strengthen community ties, empower families with knowledge, and inspire hope through shared understanding and support.