A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Articles by Mary Chapman
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
To raise awareness of the rare disease communities and celebrate the creativity of its members, the EveryLife Foundation for…
July is National Fragile X Awareness Month, an annual event set aside to bring attention to the rare genetic…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
Healx has secured $56 million to develop its Rare Treatment Accelerator program that is designed to help develop…