Author Archives: Mary Chapman

NORD’s Caregiver Respite Program Continues Through Pandemic

Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. To help meet that need, the National Organization for Rare Disorders (NORD)’s Rare Caregiver Respite Program may be a helpful resource. The program seeks to give a…

National Fragile X Awareness Month Is Underway

July is National Fragile X Awareness Month, an annual event set aside to bring attention to the rare genetic condition. Across the country, the fragile X syndrome community is observing the month by spotlighting individuals, posting educational flyers, and placing awareness magnets on vehicles, among other efforts.