Applications are being accepted for an innovative new four-year college program at the University of California, Davis (UC…
Articles by Mary Chapman
Fathers or male caregivers of children with fragile X syndrome are invited to contribute to a U.K. film project…
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…
Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The…
While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “…
Butterflies, ballerinas, and abstract flowers are featured among the winning artwork of this year’s Rare Artist contest, hosted by…
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and…
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
Confluence Pharmaceuticals will use a $100,000 investment to further its development of ACP, an investigational therapy that aims to…
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…