Advocacy partner:
FRAXA Research Foundation

FRAXA Research Foundation is a nonprofit organization dedicated to finding effective treatments and ultimately a cure for Fragile X syndrome. Founded by parents, FRAXA accelerates scientific discovery through targeted research grants, collaboration with leading scientists, and support for clinical trials. Its mission is to improve the lives of individuals affected by Fragile X by driving research that leads to meaningful, lasting change.

Contact: Holly Roos – Community Services Director
Phone: (978) 462-1866
Email: [email protected]

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Medication Guide for Fragile X Syndrome

A Gift to the Fragile X Community

This Medication Guide for Fragile X Syndrome (Version 6, 2025) is offered as a gift to the community. It was created to support families and caregivers as they navigate treatment options for the behavioral and psychiatric symptoms of Fragile X syndrome.

While each person with Fragile X is unique, many experience symptoms such as anxiety, hyperactivity, impulsivity, mood changes, and social difficulties. Medications can be an important part of managing these challenges, but finding the right treatment can be difficult, especially when healthcare providers are not familiar with Fragile X.

This updated medication guide helps bridge that gap. It offers clear, parent-friendly information about medications commonly used in Fragile X syndrome, including how they may help and what to consider. Whether you are exploring medication for the first time or want to better understand current options, this Fragile X medication guide is here to support informed decisions and stronger collaboration with your care team.

Disclaimer

This guide is not a medical textbook and cannot take the place of a qualified physician.
It is intended to serve as background information to help parents, caretakers and others communicate with their physicians regarding medications. The medications described in this guide are to be used only under the supervision of a qualified physician; almost all are available only by prescription.

Download the guide

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The information above is provided by our partner. Learn more about our advocacy partners here.