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April 30, 2019April 30, 2019

Confluence Gets $200K from University-affiliated Venture Fund to Develop Fragile X Treatment

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An Indiana University-affiliated venture fund has invested $200,000 in Confluence Pharmaceuticals to continue development of the company’s lead product for the treatment of fragile X syndrome. Along with AOP ... Read more

April 23, 2019April 23, 2019

Cognitive Training Program Provides Benefits for Young Fragile X Syndrome Patients, Trial Finds

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A computer-based cognitive training program called Cogmed can improve working memory and cognition and increase the attention span of children and adolescents with fragile X syndrome, according to a ... Read more

April 18, 2019April 18, 2019

CRISPR-Gold, Using Non-viral Carrier, Edits Fragile X Gene in Mice to Ease Exaggerated Behaviors

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A newly developed version of the gene editing technology CRISPR — a non-viral delivery system called CRISPR-Gold — can effectively edit an autism-associated gene in a mouse model of ... Read more

April 16, 2019April 16, 2019

Mindfulness Program Run on App May Help Ease Stress in Women with Fragile X Children, Study Says

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A mindfulness program run on a free mobile app may be a feasible way of easing stress in mothers of children with fragile X syndrome (FXS), especially the many ... Read more

April 11, 2019April 11, 2019

Telehealth Is Feasible, Effective Way to Treat Behavioral Issues in FRX, Study Shows

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Implementing behavioral treatment via telehealth is a feasible and potentially cost-effective strategy for treating behavioral problems in boys with fragile X syndrome, a study shows. This strategy is able ... Read more

April 9, 2019April 9, 2019

Patient’s Age, Family Income are Factors for Accessing Healthcare, FXS Caregivers Survey Reveals

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Caregivers of younger children with fragile X syndrome (FXS), and those with lower family incomes, report more difficulties in accessing specialized healthcare in the U.S., a recent study found. ... Read more

April 4, 2019April 4, 2019

Green Tea Compound Significantly Improves Cognitive Function in Fragile X Patients, Study Finds

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Treatment with a compound found in green tea leaves significantly improved cognitive function in patients with fragile X syndrome, a study shows. This new clinical data came from a ... Read more

April 2, 2019April 2, 2019

Early Social Avoidance Can Predict Autism but Not Anxiety in Boys with FXS, Study Says

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Increased social avoidance during infancy and early childhood in boys with fragile X syndrome (FXS) is associated with higher risk of autism spectrum disorder (ASD) and lower risk of attention deficit/hyperactivity disorder (ADHD) ... Read more

March 28, 2019March 28, 2019

Pediatricians Unfamiliar With Guidelines for Genetic Testing of Children With Global Developmental Delay, Study Finds

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Pediatricians might not be aware of guidelines for genetic testing in children with global developmental delay (GDD), even though they often order such tests. This suggests the need for ... Read more

March 26, 2019March 26, 2019

Mavoglurant Rescues Specific Neural Networks in FXS Mice, Study Finds

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Mavoglurant (AFQ056), a candidate for the treatment of fragile X syndrome (FXS), restored functionality in sensory networks but failed to do so in a cognition-related brain region in a ... Read more

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